Oh Controversy.
It’s 5am and I’m awake. I went to bed at about 12:30am but woke up about half an hour ago because Lucky was whining to be let out and when I tried to go back to sleep, it was a no go because there’s too much on my mind, namely agoraphobia.
Yesterday or the day before, Blake had a troll on his Cubeless blog and the troll said, “Grab yourself a job instead of claiming agoraphobia of convenience which seems to kick in every time you have to go shopping, but lifts when there’s an art show or a concert you absolutely have to attend because you’re ‘creative’.” And that wasn’t the first time in the last couple of weeks where people questioned my agoraphobia. At a forum I frequent, there’s a thread in a secret forum called “Reasons to feel good” and when our Gogol Bordello tickets came, I posted the picture of me holding them up to the cam in that thread and a couple of people said “wait, don’t you have agoraphobia?”
And that’s the thing. Agoraphobia isn’t a cut & dry thing. It’s different for each person. In my case, I can’t go anywhere by myself and there are certain places, like grocery stores, that I avoid because they give me anxiety to the point of panic attacks whether Blake’s with me or not. And in the case of the grocery store, yes, Blake does the groceries and it’s not so much because I can’t (well, since I haven’t done it so long and have next to zero concept of money anymore it would cause a problem anyway) but it’s simply a case of, “why make it a family outing when Blake can just go in, get what we need and come home”? Since I can’t go by myself, and I don’t have a car even if I could, that’s the way things have to be and the way things are. In case I wasn’t clear, when it comes to groceries, why take 4 people to the store, which over-complicates things, when Blake can just go in, get what we need, not go over budget, not impulse buy, and be home in half the time it would take us if all 4 of us went. Plus, if all 4 of us went, there’s a very good chance that I would have a panic attack and would require medication (Ativan) to first get there and some more to actually stay there.
As for art shows, well, that’s actually a laughable thing. I’ve only ever been to one art show in my life and it was Touched By Fire, which is put on by the Mood Disorders Association of Ontario. If anyone’s going to understand my idiosyncrasies at such an event, it’s going to be those people, or at least that was my logic behind going. Being in the city (Toronto) makes me very very nervous and the night of that art show, I must have taken at least 4 Ativans. But the thing was, I was totally fine at the show and I actually questioned this after the fact the next time I saw my shrink. I wanted to know how come I was totally fine at that show, yet I can’t go to Wal*Mart or even the art supply stores by myself and she said that it’s because at an art show, I have a defined role, I’m an artist, and therefore there’s guidelines as to how to act which are comfortable to me because I can easily play that role for that is what I am. I mean, I wasn’t totally fine at the show, when Gayle Cutler wanted me to do a commission, Blake had to navigate the business end of things because that’s not a role I’m comfortable with. While he did that, I hid in the bathroom. Literally.
And as far as concerts, well gee, the last concert I went to was either System of a Down or Metallica, I can’t remember and both of those shows were at least 7 or 8 years ago. With Metallica, I almost didn’t go because I had a meltdown half an hour before we had to leave. I ended up going to the show in my pajamas after Blake spent 45 minutes talking me into going. With Gogol Bordello, they are my favourite band right now and there are certain experiences where I know I’d have regrets if I didn’t go and this show is one of them because Gogol Bordello doesn’t come to Toronto very often. As I said when I posted the picture of the tickets, I have roughly 2 months to psych myself into going. A normal person wouldn’t have to do that. And even when I do go, I’m going to have to be chowing down clonazepam (klonopin) and Ativan like there’s no tomorrow. I won’t be in the pit. I’ll probably be way at the back, away from people. I’ll also be with Blake and our two best friends so I’ll have like, a circle of protection, which helps. Going to this show is not going to be an easy thing for me at all and actually another aspect of this endeavor is that when I posted the pictures of the concert tickets on that forum that I frequent, one of the members there, whom I’ve known for many years and who lives in Toronto, asked me if I wanted to get a drink and meet up before the show, to which I replied “hellz no” because that is completely outside of my comfort zone, especially when going to the show is going to be hard enough as it is. I am already losing sleep over this show because I don’t know what to wear – and it’s 2 months away.
I don’t know what to wear because where I’m at right now as far as weight loss is that I don’t fit into my “normal” clothes just yet and my “fat clothes” are now too big. Chances are, I’m going to have to buy something to wear to the show and since we’re not particularly made of money that stresses me out.
And as far as meeting this person I know from the forum I frequent well, the thing is, I decided a while back that I wasn’t going to meet people from the internet anymore with very few exceptions and the reason for that is because…I’ve met roughly 200 people from the internet in the last 12 years and during the last several encounters, I’ve realized that people sometimes don’t want to meet me to actually meet me, they want to judge me to see whether I’m the same in person as I am online (which I am) but more than that, they want to be able to tell people that they met me because it gives them cool points or something in our respective circles. I’m a notch on a belt and I’m not cool with that.
The fact of the matter is, I have agoraphobia. It’s not a phobia of convenience as Blake’s troll implied, it just presents itself in a certain way where I can go certain places and do certain things, but quite often those things take a lot of planning, a trip to my shrink, psychiatric medications and a lot of preparation.
I left the house the first week of January to see Avatar. I was supposed to go to a baby shower in Toronto at the end of January but I couldn’t deal with going to a place with a bunch of people I didn’t know so I didn’t go. Seeing Avatar in January was the only time I left my house that month. In the first week of February I went to my doctor to get a new prescription and in the second week of February, I went to my shrink appointment. In the middle of February, I went with Blake to the grocery store for about 5 minutes. And that’s it. I left the house 3 times in February. Now it’s March. I went to the doctor’s tonight to get a pap smear and chances are, that’ll be my only outing for the month of March. A normal person wouldn’t be able to tell you the exact places and the amount of times they left the house in any given month, but I can because it’s such a rare occurrence and since they are such rare occurrences, I mark these outings down on my calendar. Again, a normal person wouldn’t do that.
Last spring, when I took a walk down the Trans-Canada Trail by my house to take pictures, that was the first time in about 6 & a half years that I went anywhere by myself. Last spring I tested my agoraphobic limits with mixed success. When I went to one of the local restaurants to have breakfast all by myself, I was so freaked out by the situation that I didn’t leave the house for a month. Last spring & summer, Lucky and I checked the mail and mailed things in the middle of the night and that was a huge deal. All of these things can easily be searched on this blog under “agoraphobia” for those who are interested.
My agoraphobia is compounded during the fall and winter by Seasonal Affective Disorder. I simply do not leave the house unless I absolutely have to during this time. In the spring & summer, that’s when I go back at it with the immersion therapy, although truth be told, as I’ve mentioned before, I’ve mostly given up on that because at this point I have zero motivation for trying to get better. I live in a shitty little town with nothing in it and nowhere to go and I have no car. I don’t think I can get better here. I’m not sure where I could get better exactly, but here ain’t it.
And that’s the thing, which I don’t know if it’s part of the phobia or what, but 95% of the time I’m okay with not leaving the house. I stopped fantasizing about a different life a long time ago.
Also, part of agoraphobia is that quite often, as is the case with me, the person has a hard time letting people in to their homes. It’s not just about leaving one’s home. Having people in my house is a very hard thing for me to do. At Xmas time the neighbours offered to watch my dogs for me so we didn’t have to bring them up North with us, but i couldn’t do it. I couldn’t have people in my home when I wasn’t there. And even when I am here, if people are going to come over, we all make a mad dash for the cleaning supplies because I don’t want people judging me by our home, which isn’t exactly the nicest home to begin with. A babysitter being here so Blake and I can go out? Unheard of. My kids have only been babysat in our home by our friends Alex & Ronny and my mother. When the neighbours watch the kids, the kids go over there. Hiring a babysitter, like a teenager or whatever, simply wouldn’t happen.
I think my agoraphobia started in two ways: 1) I’m pretty sure that whenever I left the house when we lived above my grandma’s furniture store, she came into the apartment and snooped. That made me so mental that I stopped leaving the house so she couldn’t do that and that’s why I can’t have people in my house when I’m not there now. 2) When Blake moved in and had to give back his car, he took over mine and it was just easier for him to get groceries on the way home from work than for me to go do it after he came home and I have access to a car. Since we lived in the middle of nowhere, there was nowhere for me to go, especially without a car. And this lasted years until it became habit and then became phobia.
But long long long before that there were signs that this was just part of my natural state. When I was 15 and living with my boyfriend at the time’s parents, I rarely left the house then too. I would go to check the mail which meant walking about 20 feet from the house and I would do so in my pajamas at 2:30am. Sometimes I’d go to my Aunt’s house in town, which was about a 15 minute walk, but again, I’d only do it at night and most of the time in my pajamas.
I know when I absolutely have to, I can leave the house, kick ass and take names. When Zulu got hit by the car, I didn’t even think about it, I got in the car with the cop who stopped to help, with Zulu in the back seat and I dealt with the vet by myself and went back home with the cop while Blake was on his way to the vet’s to take care of the rest. When it was just Madison and I in our apartment in Uxbridge, I only had a bar fridge and I’d load Madison up in her stroller and we’d do groceries every day. When I was in college, I dealt with Madison going to daycare and drove myself to Toronto every single day because in all of the above scenarios, what choice did I have?
If Blake died tomorrow, I’m fairly confident that we’d all be okay and that I could get shit done. (Don’t get me wrong, Blake dying would suck, but life does go on, bills still have to be paid, kids still have to be driven to school.)
As things stand though, as I said, there’s little motivation for me to get better. There’s nothing in the outside world for me except these rare situations like an art show, a movie or a concert and I do all of the above extremely seldom.
As I said in the beginning, agoraphobia is not a cut & dry thing. It affects everyone differently. Yes, there are similarities in every agoraphobic patient, but they all have to be treated on a case-by-case basis. I’ve just explained how my case presents itself and it is my hope that I won’t have to do it again.
